Charity websites can be very useful for Continuing Healthcare assessments as they can provide useful evidence of the impact of particular conditions. Having statistics and evidence from organisations can support your case. You can also discover other information that you may not have been aware of that may support you in other ways.
The list is not exhaustive but is a good indicator of what kind of information is available on the internet. Each charity mentioned below is linked to their website. Each charity is responsible for the information contained on their site.
Cystic Fibrosis Research Trust
FND Hope UK (Functional Neurological Disorder)
Foundation for People with Learning Difficulties
Headway - National Head Injuries Association
Huntington's Disease Association
Motor Neurone Disease Association*
Multiple Systems Atrophy Trust*
This charity is currently working on a national initiative to help raise awareness on new ways to help those suffering from Parkinson’s Disease. Further details can be found at https://www.drugscience.org/parkinsons/
Shine (Spina Bifida and Hydrocephalus)
SUDEP Action (Sudden Unexpected Death in Epilepsy)
* Member of the Continuing Healthcare Alliance, a group of 18 charities and organisations who believe that NHS continuing healthcare needs to improve. They aim to make continuing healthcare fairer and easier to access for those who need it most.
