Charity websites can be very useful for Continuing Healthcare assessments as they can provide useful evidence of the impact of particular conditions. Having statistics and evidence from organisations can support your case. You can also discover other information that you may not have been aware of that may support you in other ways.

The list is not exhaustive but is a good indicator of what kind of information is available on the internet. Each charity mentioned below is linked to their website. Each charity is responsible for the information contained on their site.

Age UK*

Alzheimers Association

Alzheimer's Society*

Arthritis Care

Arthritis Research UK

Autism Independent UK

Brain Injury Hub

British Heart Foundation

British Liver Trust

Brittle Bone Society

Carers Trust*

Carers UK

Cystic Fibrosis Research Trust

Dementia UK*

Down's syndrome Association

Epilepsy Action

Epilepsy Research UK

Epilepsy Society

FND Hope UK (Functional Neurological Disorder)

Foundation for People with Learning Difficulties

Genetic Disorders UK

Headway - National Head Injuries Association

Huntington's Disease Association

Learning Disability England*

Lymphoma Association

Marie Curie Cancer Care*

Macmillan Cancer Support

ME Association


Multiple Sclerosis Society*

Motor Neurone Disease Association*

Multiple Systems Atrophy Trust*

Muscular Dystrophy UK

Parkinson's UK*

This charity is currently working on a national initiative to help raise awareness on new ways to help those suffering from Parkinson’s Disease. Further details can be found at

Patients Association*

PSP Association*


Shine (Spina Bifida and Hydrocephalus)

Spinal Injuries Association*

Stroke Association*

SUDEP Action (Sudden Unexpected Death in Epilepsy)

Sue Ryder*

The British Polio Fellowship*

The Neuro Foundation


* Member of the Continuing Healthcare Alliance, a group of 18 charities and organisations who believe that NHS continuing healthcare needs to improve. They aim to make continuing healthcare fairer and easier to access for those who need it most.