Summary of Case

40 year-old female with uncontrolled epilepsy causing life-threatening tonic-clonic seizures.

Average of two tonic-clonic seizures per month. These are life-threatening due to post-ictal apnoea.
Approximately 10-20 absences every day. Many more than this can occur on stressful days.
'Sub-clinical' seizures happening all the time.
Buccal Midazolam rescue medication for non-convulsive status epilepticus. This impact of the medication is currently reducing.
Memory difficulties.
Continuing Healthcare package in place since 2009.
Nearly twenty different medications have been tried to gain control of the epilepsy. Nothing to date has had an impact on the life-threatening seizures.

Evidence provided by multiple GPs, one Epilepsy Specialist Nurse and four neurological consultants - all in support of maintaining the package due to the medical needs of the life-threatening seizures.

Decision Support Tool in 2009 identified:

Priority for Altered States of Consciousness
Severe for Cognition
Severe for Medications

Reviews carried out in August 2010, July 2015 and April 2017. Care package remained unchanged.

Summary of Case

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